Sickle cell and reproductive health part 1

For the last 2 decades of sickle cell advocacy in Uganda the emphasis has been put on management of the disease to reduce on the number of children who die every year.

In that field there has been a tremendous success and now we have many adults with sickle cell who have survived. 
Because sickle cell was always referred to as an infant disease little emphasis has been put on adult care. The reproductive life and healthcare of people with sickle cell disease has not been included in most of the reproductive health programs.

Its more common to speak to different players in the reproductive health and if you mention sickle cell their scripted response will be "we don't handle sickle cell people in our reproductive health programs"

There is still limited information on the experiences of people with sickle cell. 

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