On Saturday 28th June 2014 Sicklecell Network Uganda had a meeting with parents of people living with sickle cell disease in Bamunanika Luwero District. We met 12 parents but there was horrific stories which i want to share with you.
There was a gentle who said that he has a child with sickle cell disease but has lost four babies and at first he did not know what the cause of their death. Another lady has two children with sickle cell disease and when a girl of 25 years was introduced on Hydroxyurea she became unconscious and became mentally sick. She was weaned off hydroxyurea but she still has the effects.
Another horrific story an old who seemed to be in her sixties. She gave birth to two children and they died early. She did not know the cause of their deaths. She now has 3 children with sickle cell disease and the husband chased her claiming that she is the cause of sickle cell.
There is still a lot of ignorance. These people have a nearby clinic which treat people with sickle cell at Kasan Health Centre IV but it work for only one day a week on Tuesday. And in most cases they have to get treatment from Mulago Hospital.
Stories are heart-aching. People are still ignorant about sickle cell a lot needs to be done.
We call for your support to bring to an end this monster.Your support is welcome.
If you have any group of people you want us to sensitise in your community, school, church, mosque you can invite us.
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