On 5th July 2014 I was in Mulago hospital acute ward to see my colleague who has a son admitted. I found a 13 year boy who was in a crisis he has sickle cell disease. But having sickle cell disease is not what I want to look at here. This boy was brought by another kid younger than him. Because the sickle cell clinic work only 5 days he was brought to Acute. He had been brought in morning but upto 9pm when I left hospital not his mother or dad had come to see their son. When asked why his parents had not come he said his mother is at home looking after her 3 years child whom she can't leave alone at home.
My friend Evelyn tried to talk to nurses to treat him. But one nurse told her that she can't treat him because he didn't have parents. But after some time they treated him. Another backbreaking statement the nurse made was that parents are tired of children with sickle cell. This is a statement made to a mother of a child with sickle cell who was writhing in pain.
These are every day stories which are happening.
A week before a father contacted us as Sicklecell Network and his son was admitted in Mulago Hospital. My colleague Evelyn went and talked to the mother. The mother is UPDF soldier. She found her heartbroken she was about to give up and had vowed to take her son and drop him at her mother's home to save her job in the army. After the discussion she agreed to take care of her baby and were discharged
A lot needs to be done. I shall keep you updated about what we can do for this innocent boy who never asked God to give him sickle cell
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