Travelling 300 kilometers away from Kampala our capital to meet Carol a 19 year old who looks like a 10 year old girl. She is living with sickle cell disease in Busia district at Uganda-Kenyan border town. Sitting down to have a chat her you realise the confidence she has.
When she was diagnosed with sickle cell at 16 years her parents and herself were told by community members that she will not live past 18 years.
"When I made 18 years it was a school day and I went to school but was absent minded. I was only waiting to die. I went back home and when I went to bed I never expected to wake up the next morning. The next day I woke up still alive and kicking. I was too excited to be alive. It was like another birthday and a new lease of life. Am still asking myself why did they have to give me a time limit" she teary speak.
In the area where she lives most girls are allowed to study the primary level and after they are married off. She is completing her primary level next year. Carol is just a year away from getting married.
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